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Home Based Care Alliance

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Home Based Care Alliance

Tag Archives: government

Disappointment at the End of the 56th Commission on the Status of Women

10 Tuesday Apr 2012

Posted by Home Based Care Alliance in Home

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advocacy, civil society, Commission on the Status of Women, CSW 56, development, government, grassroots women, Huairou Commission, Michelle Bachelet, moral hazard, rural women

The 56th Commission on the Status of Women took place in New York City from February 27 through March 15, 2012. It was a very important and unique session for rural women around the world as this year’s theme focused on “the empowerment of rural women and their role in poverty and hunger eradication, development and current challenges”.  In particular, women delegates had the opportunity to meet with representatives from their countries and participate in meetings and side events, voicing their opinions and personal experiences to issues very applicable and significant to them.  Additionally, women were able to share their knowledge and skills amongst themselves.

The high level of participation in the session’s formal meetings and side events by government representatives and civil society generated expectations that stakeholders were ready to pay attention and provide the essential resources, to move forward the situation of rural women and girls. Unfortunately, the 56th CSW turned out to be a disappointment and a frustration to many. The session, which opened on February 27 was supposed to have ended on March 9, but lingering negotiations on the agreed conclusions forced the Commission to extend its work by one week.  According to Michelle Bachelet, Executive Director of UN Women, delegates could not be of the same opinion and defeat “a disappointing inability to reach consensus”. This is a detrimental blow to rural women and those advocating for their rights and economic empowerment.  Especially since the CSW is an ideal occasion for such advocacy, and provides a platform for rural women to speak directly and candidly to governments and other NGOs.

The representative of Norway spoke very eloquently when he used the term “moral hazard” in his closing statement. “The term moral hazard is often used when someone takes risky decisions, because they know that someone else will pay if the decision is wrong. I am sad to say, this is precisely what we have witnessed at this year’s meeting of the CSW. In statements and in speeches, and in negotiations, we have seen how moral values have been evoked to deprive women of their human rights, their opportunities, and ultimately for some, their life. This is the real moral hazard of our time!”

It is regrettable that in 2012, governments and civil society cannot agree on a common solution to concerns that affects one quarter of the world’s population and are a crucial economic key to improving food security, caring for HIV/AIDS patients and alleviating poverty in rural areas globally.

Norway’s representative went on to say, “This means we have to comprise. Many will have to let go of some traditional convictions, also when they are based on religious belief or culture. After all every country, every culture and every society undergo permanent change. That’s what’s called, development”.

It is the hope of the Huairou Commission that in the near future no obstacles will stand in the way to ensure that rural women all over the world receive the necessary support so that they can see development in their communities.

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Providing Care for Half a Lifetime: Caregiver Spearheads Zambian HBCA

28 Wednesday Sep 2011

Posted by Home Based Care Alliance in Caregiver Profile

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Africa, government, HBC newsletter, Home Based Care Alliance, Zambia, Zambia Homeless and Poor People’s Federation

Milliag Mhlanga

My name is Milliah Mhlanga I am 62 years old. I live in Desai compound in Lusaka, Zambia.  I belong to the Zambia Homeless and Poor Peoples Federation (ZHPPF) HBC and I have been a Home based caregiver for eight years now. Although I was trained as a caregiver just eight years ago, I have been working as a caregiver since I was 30 years old. I used to offer my help voluntarily to people in my area, I used to assist those that had been discharged from hospital but were not yet strong enough to do household chores. My service did not go unnoticed by the community, thus when an opportunity came for palliative care training, I was selected to do the training. People saw how committed I was.Through my continued commitment, I was chosen as a leader. My community wanted others to learn from my example of commitment.  We are doing a lot in our community, but it is not recognized by the government. For this reason, when time came to form the Home Based Care Alliance I took the lead. I wanted our efforts to gain recognition. If I compare the situation 30 years ago when I started giving my services to the community, I can see now that the burden is becoming more. As home based care givers we have more to do now. Previously (30 years ago) I used to see an average of two people per month but now I have over 20 people on average to take care of every month. There are more people that the hospitals are discharging who still need care.  The nurses and doctors at the hospital never make follow ups on the patients they discharge; it is up to people like me to take care of them until they are strong enough.

One moment that inspired me was when we had a patient in our community who needed 24 hours care. I could not manage to do this alone. I informed other caregivers and we took turns to take care of her until she died. This made me realize that we needed to work together even though we were trained and reported to different organizations. Also as we worked we shared our experiences, from which I noticed that we were basically facing the same challenges. These challenges could only be addressed if we united and spoke with one big voice. As a caregiver I provide compressive care for the patient. A nurse will give medicine but will not take care of other needs such as washing the patients (especially those bedridden who cannot manage to walk to the restroom). Also as a caregiver I develop a relationship with the patient which nurses rarely do because they have shifts and may be assigned to a different ward. But as a caregiver the patient will see me every day and we have more time for discussion which helps build trust. They look to me not as a caregiver but as their grandmother, mother, sister or aunt. Such care is not provided for by government workers. As we try to form the HBC alliance we have to do a lot of movements to meet caregivers in other parts of the district, and this cost money.  We have to limit our movement depending on money available. I would have like it if the whole country was covered in the formation of an alliance but that is a challenge. If government and Non governmental organizations were to assist us, we could appreciate it and make an alliance that covers the whole country.

My vision for my community is that we should be able to have caregivers who are recognized by the government within our community. Non governmental organizations come and go but we shall always be with our government. If the government recognized us as workers, then we could have a continuation of HBC services in our community. My vision is also to see that we have viable income generating activities in our community that would provide funds to assist the clients in our community.  There are times when as a caregiver, I use my own funds to assist where there is a pressing need.

I have hope for the future because the few meetings we have had so far in planning to form the Alliance have shown me that we can do it. We have the confidence and we are united even though we are coming from different organizations.

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This story can be found in The Home-Based Care Alliance Newsletter Vol 1, Issue 2 August 2011.  This is issue also includes Global Advocacy Updates, Benin Caregivers Taking Lead, Overcoming Obstacles & Transforming Community, and more!

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♣ Tags

AIDS Ato Getnet Benin care and support caregivers Commission on the Status of Women compensation for contributions COWLHA CSW 56 DFID Ethiopia food security global fund on aids government grassroots women GROOTS groots kenya GROOTS Zimbabwe HBC service HIV HIV/AIDS home based care Home Based Care Alliance home based caregivers Hospice and Palliative Care Association of South Africa Huairou Commission international conference on aids IWCC kenya Mary Joy Nigeria OSSA People's Process PEPFAR SHAFON slum women's initiative for development ucobac Uganda Uganda ministry of health UK Consortium on AIDS and International Development UNAIDS VSO WHO Zambia Zambia Homeless and Poor People’s Federation

Links

  • AIDS Portal
  • Care Givers Action Network Care Givers Action Network
  • Huairou Commission Huairou Commission
  • Stephen Lewis Foundation
  • UNAIDS UNAIDS

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